Pediatric Diabetes

Children and teens with type 1 diabetes need insulin to replace the insulin their body does not make. Kids with type 2 diabetes may need insulin or medicine that helps insulin work better in their bodies. Kids can get insulin from shots or an insulin pump. There is no pill form of insulin.

Your doctor will tell you what kind of insulin or medicine your child needs. A nurse will show you or your child how to give the shots or use an insulin pump.

Your care team will explain how to test your child’s blood sugar levels and how often to do it. Most people test a drop of blood from the tip of their finger. A small handheld machine called a glucose meter will tell how much glucose is in your child’s blood. The machines are also called glucose monitors.

Keep good records of your child’s blood sugar levels and bring them to check-ups. Your healthcare provider will tell you the blood sugar levels to aim for.

Ketones (key-tones) are chemicals that show up in pee (urine), blood or breath when the body breaks down fat for energy. Ketones can build up in your child’s body and make them sick. The body burns fat when there is not enough insulin to allow sugar to be burned for energy.

Your healthcare team will tell you how to test your child’s ketones and how often to test. Testing tells us if your child is taking enough insulin to turn off ketone production.

Urine ketone testing is very important. A method for testing ketones must be kept in the home (and taken on trips) at all times.

Ketones are measured as being negative (our target), small, moderate or large.

A dietitian (die-uh-tish-uhn) will help work out a meal plan for your child. Your healthcare team will tell you how strict your child’s diet needs to be.

When your child eats, their body turns food into a type of sugar called glucose (glue-kohs). Blood glucose (or blood sugar) levels go up. Your child can prevent a sharp, unhealthy rise in blood sugar at mealtime by taking insulin if needed before meals and by eating healthy foods. If your child’s blood sugar drops too low, they may need some quick sugar in the form of juice or candy.

Being active is good for a child with diabetes. It helps your child’s cells take in glucose. This lowers the blood sugar levels in their body. Talk to your care team about an exercise plan that will be fun for your child, such as walking, soccer or swimming. Check with your doctor before your child makes a big change in exercise habits or starts a new sport.

When your child exercises or goes on an outing, first check their blood sugar. If your child takes insulin, bring a bag packed with:

• A water bottle
• Glucose tablets, hard candy or juice for emergency low blood sugar
• A healthy snack such as crackers and cheese or a sandwich
• Supplies needed to check blood sugar

Regular checkups with the healthcare team will help keep your child healthy and find any problems early. High blood sugar levels can damage your child’s eyesight, kidneys, heart and nerves. Diabetes increases the chance of high blood pressure or high levels of fats in your child’s blood. We keep a careful watch to prevent problems.

As we treat your child’s diabetes, our team also cares for your family’s emotional, psychological and social well-being. Our social workers, child life specialist and pediatric psychologist work as a team to help your child and family adjust to and live well with diabetes. Learn how.

As your child gets older, we help them get ready to manage diabetes without relying on their parents. Our step-by-step plan helps teens make the change to an adult healthcare provider at their own pace.

We have teamed up with UW Medicine to create the Adolescent and Young Adult Diabetes Transition Clinic. Teens get help dealing with insurance, making appointments, managing supplies and finding support at school or in the community. The team includes doctors (both adult and pediatric endocrinologists), a psychologist, a nurse educator, a dietitian and a social worker. Patients also have the option to take part in research studies.

• Children and teens with Type 1 or Type 2 diabetes need providers with varied skills and knowledge. As needed, your child will get care from doctors (endocrinologists), advanced practice providers, nurses, certified diabetes educators, athletic trainers, dietitians and social workers. Learn more about the diabetes team visit (PDF).
• Our Type 1 and Type 2 diabetes patients will receive care tailored to them. Our diabetes specialists work together to provide medical care, education, training and support to help our patients establish and maintain healthy habits and behaviors to live the most healthy life possible.
• We base our treatments on research about what works best. Our team follows standards set by the American Diabetes Association (ADA) and by the International Society of Pediatric and Adolescent Diabetes (ISPAD).
• We work hard to prevent disease, not just treat it. Our Insulin Resistance team helps kids and their families make lifestyle changes to prevent type 2 diabetes.
• Our Emergency Department offers round-the-clock access to Seattle Children’s experts and the full facilities of our hospital.

Seattle Children’s researchers are working with biotechnology partners to treat or prevent T1D. T cells from T1D patients are edited to change these cells into ones made to shut down the autoimmune process behind diabetes when they’re transferred back into the patient.

Seattle Children’s doctor-scientists work to improve treatment and quality of life for children and teens with diabetes. What we learn through research affects the care we give all children. Learn more about current diabetes research studies at Seattle Children’s.

• Our research team may ask your family if you want to take part in research studies. You always have a choice. Some studies collect information. Others test new medicines or treatments in people to make sure they are safe and see how well they work. Learn about taking part in research at Seattle Children’s.
• In current studies, we are collecting information about complications of diabetes, quality of life, quality of care and other factors. The largest study is called SEARCH for Diabetes in Youth, under Dr. Jason Mendoza's InREACH Lab. This national multicenter study aims to understand more about diabetes among children and young adults in the United States. More than 35,000 youth with diabetes have taken part so far. SEARCH has helped determine the extent of diabetes in the community and its impact on different groups of people. This data has helped shape public health policies for diabetes prevention and treatment..
• In work that holds promise for curing type 1 diabetes, scientists aim to reprogram T cells so they protect the pancreas instead of attacking cells that make insulin. This research uses gene-editing techniques pioneered at Seattle Children’s. Read about new immunotherapies under way for type 1 diabetes.

• At Seattle Children’s, your family has a full team behind you. We work together and with you to meet your child’s medical needs and improve their quality of life.
• Our team helps you understand treatment options and handle the challenges of your child’s condition. Read how we support your child’s and family’s emotional and psychological well-being and link you to community resources.
• As they get older, your child plays a larger role in their care. With UW Medicine, we created the Adolescent and Young Adult Diabetes Transition Clinic. The team helps your teen take charge of managing their diabetes and make the change to adult care.
• We work with many children and families from around the Northwest and beyond. We can help with financial counseling, schooling, housing, transportation, interpreter services and spiritual care. Learn about our services for patients and families.