Endocrinology Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

• What to expect at your Endocrinology and Diabetes appointment
• How to prepare for your visit
• Transportation and lodging
• Hospital services
• Paying for care
• Social Work
• Emotional and psychological support for families with diabetes

Endocrine Condition Resources

Adrenal conditions

• Contact our Congenital Adrenal Hyperplasia Program to learn more about this condition.
• ACTH Stimulation Test (PDF) (Spanish)
• Adrenal Insufficiency Emergency Response Card
• Adrenal Insufficiency Action Plan (PDF) (Arabic) (Japanese) (Spanish)
• Cortisol Replacement Therapy (PDF) (Spanish)
• CARES Foundation for congenital adrenal hyperplasia (CAH)
• Congenital Adrenal Hyperplasia (Spanish) (Hormone Health Network)
• Magic Foundation

Cortisol replacement therapy packet

• Packet Cover (Spanish)
• Cortisol Replacement Therapy (Spanish)
• Adrenal Insufficiency Emergency Response Card
• Adrenal Insufficiency Action Plan (Spanish)
• Solu-Cortef Injection Instructions
• Visit your EMT Care Provider – Cares Foundation

Bone health and calcium

• Calcium: Why Does My Child Need It?  (Amharic) (Arabic) (Spanish)
• DEXA Bone Density Scans  (Russian) (Spanish)
• Fragile Bones
• Pamidronate (Spanish)
• Vitamin D (Spanish)

Diabetes

Visit the Diabetes Patient and Family Education page for resources related to diabetes.

Growth disorders

• Growth Hormone Therapy Insurance Coverage (PDF)
• Growth Hormone Stimulation Test (PDF) (Spanish)
• Glucagon Test for Growth Hormone and/or Cortisol (PDF)
• Glucose Tolerance Test (PDF)

Obesity

• Pediatric Obesity (Hormone Health Network)

Pituitary disorders

• Water Deprivation Test for Diagnosing Diabetes Insipidus (PDF)
• Growth Hormone Deficiency (Hormone Health Network)

Precocious or delayed puberty

• Leuprolide Stim Test (PDF) (Spanish)
• Workshops for girls who are starting puberty early (precocious puberty)
• Precocious Puberty (Spanish) (Hormone Health Network)
• What's Happening to Me? A Story for Girls Starting Puberty Early (PDF) (Magic Foundation)
• Precocious Early Puberty (Hormone Health Network)
• Delayed Puberty (Hormone Health Network)

Thyroid conditions

• Contact our Thyroid Program to learn more about thyroid conditions.
• Hashimoto Disease (Hormone Health Network)
• Low Iodine Diet (PDF)
• Hypothyroidism (Hormone Health Network)
• Congenital Hypothyroidism (Spanish) (Hormone Health Network)
• Congenital Hypothyroidism: A Guide for Families (Pediatric Endocrine Society)
• Graves Disease (Spanish) (Hormone Health Network)
• Radioiodine Treatment for Graves Disease (PDF) (Spanish)

Turner syndrome

• Turner Syndrome Clinic at Seattle Children’s
• Estrogen Patches (PDF) (Spanish)
• Turner Syndrome Society
• What Is Turner’s Syndrome Animation (Video 3:35) (Turner Syndrome Support Society)
• Estrogen Replacement Therapy for Turner Syndrome (HealthCentral)

General Resources for Kids With Endocrine Conditions

•  Endocrine System (KidsHealth)